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@ambernovascotia

Hi, I have totally deftness in my left ear. It was sudden acute. I had no idea this was an emergency. It started happening during Covid and nobody would look in my ear. Finally after three months I had a hearing test and two days later was sent to an ENT where they thought that I had a Glomus tympanicum vascular tumour in my inner left ear. while waiting for exploratory surgery to see if there was a tumour, the ENT injected my ear with prednisone several times and had me on 60 mg of prednisone a day, which brought my hearing up to 90% !!! One EnT wanted to keep me on prednisone for life. I didn’t like this option for obvious long term effects on the rest of my body. As soon as I stopped orally taking prednisone and having my ear injected, my hearing went completely. This took only a month. I am currently 100% death in my left. They told me this was a secondary auto immune disorder. I was diagnosed with Takayasu’s vasculitis since 2004.
I started noticing the hearing loss in September 2021. I was 39 years old. They have since told me to keep a close eye on my right, very precious ear. Oddly enough as of tonight I feel like I’m having some hearing loss and hoping to go for a hearing test tomorrow on my right side..

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Replies to "Hi, I have totally deftness in my left ear. It was sudden acute. I had no..."

Amber, I’m also shocked that the doctor they gave you the shots and wanted to keep you on prednisone for life which is bull. Crap didn’t look at any other medication‘s for you. This is such a rare disease I don’t think anybody really knows.