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← Return to Successful Depakote weaning
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Epilepsy & Seizures | Last Active: Nov 10 6:19am | Replies (43)
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He was off for about a month. I requested another eeg. During that test he had seizure activity and was put right back on 1000 mg of depakote. Been on it ever since. He is now 22 and living on his own. Of course I still worry about him all the time🫤. Now that he is older and working he is really feeling the effects of the medication especially the brain fog, memory issues and paying attention. I always thought it was just being a teenager:)
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@tlb101175
I'm going to be blunt~I think it is time for a new neurologist.
I've been dealing with epilepsy for 68 (I can't believe it) years now...I've had the best of treatment in Boston, the worst with one neuro in Indiana....who left me with a case of drug-induced lupus. First..I've never heard of a doctor just stopping anticonvulsants...boom...stop, outrageous. Then, when he went off it....you requested the EEG, which showed seizure activity.
I have a friend in England with epilepsy (70) who just got the right mix of meds so no more brain fog...and fewer memory issues.
He is so young, I think it would be great if he could be seen by a 'fresh-view' neuro. Where do you live? I had two grand mal as a teen, one at 31 and one at 34. But during all that time I was a single mom, running a house with 3 jobs sometimes and mentally sharp and aware. It may take some trial and error, as I experienced, but with today's advances in meds...I'd be surprised if they even had him take Depakote anymore.
I'm sure my parents worried, but I didn't. I used to work with The Epilepsy Foundation while in New Hampshire; my desire was to do away with the fear and restrictions some parents imposed on their young ones. I felt like if I fell...I'd get up. I'm proud of your son for wanting to be on his own. He has to have confidence in his ability to cope. Is he wise at 22? I had one son that was and another who just getting there. Your love for him is evident and he's very fortunate.💞