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Do you know about the NTM Talk Podcast series?

MAC & Bronchiectasis | Last Active: Jun 9, 2023 | Replies (14)
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@irenea8

yes understood. I have Mucoid strain Pseudomonas. Just wondered how long it put it into hiding and if it helped on the whole or not so much. I have never done IV. Think about doing it but gut is so bad even Tobramycin affected gut and kidney. Had to stop.

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Replies to "yes understood. I have Mucoid strain Pseudomonas. Just wondered how long it put it into hiding..."
susanmb | @susanmb | Jun 9, 2023

I was recently diagnosed with pseudomonas. Probably had it for several years, but was not able to produce sputum until 6 months ago. I had a one month course of Tobramycin with two weeks of Cipro. Had a remarkable reaction. Was two months free of any symptoms, felt better than I have had for years, and able to walk 6 miles a day. Then symptoms returned. Now am repeating treatment and feeling better. I have had no side effects from Tobramycin, except from hoarseness the first time. I know pseudomonas is difficult or impossible to eradicate . How is colonization and Mucoid strain diagnosed? Has anyone been on continuous Tobramycin?

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