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Concerned about the side effects of anastrozole

Breast Cancer | Last Active: Jul 28 9:25am | Replies (1934)

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@cindylb

I have been an active member of this discussion for quite a while and so I thought I'd share here a new complication I am experiencing with my breast cancer 'recovery'. First, yesterday was my four year anniversary of my bi lateral mastectomy and I'll have my check up in December and hope that I am four years cancer free.....that's the good news! Unfortunately a little over two weeks ago I got cellulitis in my left hand (from a tiny, itty bitty cut) and I went into sepsis. I was hospitalized for 6 days on IV antibiotics and released on a long term IV antibiotic. I am allergic to antibiotics, so it's been a huge challenge. Every oral antibiotic they add to help my recovery (which is slow at best to kill the infection) has sent me to the ER with an allergic reaction.
The cellulitis is in the left arm that had some very mild lymphodema (that the doctors were very slow to acknowledge due to the fact that only one lymph node was removed during surgery). I thought I had the lymphodema in decent control after a scar revision surgery 3 years ago, but I think maybe not.
Anyone experience cellulitis or sepsis from lymphodema or? I'm finding it hard to get more information or support (and the doctors are of course focused on killing the infection and struggling somewhat). Looking for input wherever I might find it. Thanks!

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Replies to "I have been an active member of this discussion for quite a while and so I..."

I haven’t had that happen, but it is precisely the kind of problem that I’m on constant vigilance about. I am 3 years post-bilateral mastectomy— congratulations on your 4 years! My cancer surgeon only reluctantly signed a referral to a lymphedema therapist because he said only about 20% of his patients develop lymphedema. 🤨 And I changed primary care physicians because one of the people on her staff literally argued with me when I said “no BP cuff” on my affected arm!
I do work with my lymph therapist on risk reduction... for example, I wear (Solidea low compression) sleeves anytime I do anything that might stress my (also left) arm (and I keep spare sleeves in my purse and car for unexpected “opportunities“), I do MLD massage on myself, I carry antibiotic cream and bandages at all times to put on any little nick or cut. I had 20 lymph nodes removed. I am taking your struggle to heart. Good luck! I’ll keep thinking of you.

I met a lady who has severe Lymphodema on her left arm - she said she is always vigilant as any slight injury, causes her severe cellulitis. She is also a BC survivor - but they took out 29 of her 30 lymph nodes on that arm, like 15 years ago. So she still has problems. All of her nodes were negative - but maybe that's what they did back then. Seems like the surgeon was crazy to me. Good luck & she was wearing a compression sleeve.