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DiscussionLooking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: 1 day ago | Replies (997)Comment receiving replies
Replies to "I am 45 and have non-diabetic neropathy. In my youth I was a gymnast for 10..."
You might find this helpful if your PN developed only after the Covid vaccination. The trauma to your foot would typically be suspect for nerve damage, yet you apparently had no symptoms until the Covid events.
See this: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9128783/
Hope this helps.
I did have slight neuropathy in my feet and was noticing a balance issue; but, it was when I actually got COVID that I got the screaming pain so there has to be some connection. I just had the Boston Scientific trial implant. So far have not experienced any relief by the 3rd day-still working on different programs. I, too, had an extremely active life and had hoped for many more years of the same. All we can do is try everything!!
Please share your experience with the Nevro. I was supposed to go for a consultation for the trial, but I cancelled, basically out of fear. I got talked into vein ablation because my feet were turning bright purple/red & I thought it was caused by a circulation problem. It aggrevated my neuropathy & I regret doing it. My PCP concured with the vascular doctors assessment. Btw, the red skin is now much worse & spreading to my ankles. Anyway, I am now extremely cautious about any procedure that has the possibility of making things worse, even if it's only for the one week trial period. It would be so helpful to hear your thoughts on the Nevro. Thank you.
I had the Nevro implant about 1 1/2 years ago. I get some relief from it but I get overstimulated which they told me happens to around 10% of their patients. The trial went well but it has been a challenge since the implant. I was hoping to reduce my medication of Gabapentin but that has not been the case.
Hi @rayjay, Welcome to Connect. I have idiopathic small fiber PN but had it years before getting COVID after being vaccinated. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. Since you mentioned you are considering a spinal cord stimulator I thought you might want to see these related discussions.
– Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/
– Update on my DRG stimulator Implant. Implanted 12 days ago. https://connect.mayoclinic.org/discussion/update-on-my-drg-stimulator-implant-implanted-12-days-ago/
– SPR Peripheral Nerve Stimulator (SPRINT) https://connect.mayoclinic.org/discussion/spr-peripheral-nerve-stimulator-sprint/