← Return to My PN? What do you mean it's "progressive"?

Discussion

My PN? What do you mean it's "progressive"?

Neuropathy | Last Active: Jun 23, 2023 | Replies (36)

Comment receiving replies
@johnbishop

Hi Ray, I also have idiopathic small fiber PN which really started in my 50s and I'm 80 now. Started with numbness in my toes on both feet and gradually worked up into my feet and lower legs over the years. My PCP told me it was probably neuropathy but with numbness there weren't any treatments that were going to make the numbness go away so I didn't bother with getting a diagnosis until I started worrying about the progression in my early 70s. Progression can be slow like mine was or like others have shared happens overnight. My own opinion is that the only thing that we can do is make lifestyle changes that will possible slow or stop the progression. I do think exercise and a healthy diet are a big help along with what you are doing... learning as much as you can about the condition. Kudos to you!

Jump to this post


Replies to "Hi Ray, I also have idiopathic small fiber PN which really started in my 50s and..."

Thanks, John!

I'm keeping up with my at-home exercise (I could always be doing more) and being strict about eating a good diet (credit goes to my partner for that; she's a cook-from-scratch wiz), mostly because––with what little any of us (doctors, patients, et al.) know about our idiopathic PNs, what else can I do? I have to keep fighting the good fight, because … well, again, what else can I do? Some sort of exercise + a good diet––and education! I almost forgot about education. I'm learning a lot from the Foundation for PN's videos (webinars). It may not "cure" my PN, but it may at least make me a fellow who asks better questions.

Let me say, too, John, how much I appreciate your interest in our gazillion posts and the many, many helpful things you say. It's good to know you're "out there"!

Cheers!
Ray