I have had a diagnosis of lupus (and/or mysositis) for almost 20 years but my PCP did a full ANA panel and I have >8 anti-centromere antibody (previous ANA was 1:5120). So scleroderma is now being investigated. I watched a video that said "limited" meant limited skin effects to hands and a few other areas but that there were still internal effects, especially pulmonary hypertension, with that particular antibody.
I have been really sick this summer from the sun. My kidney function has dropped. And my hands and feet hurt. Hands are starting to curl up and look crooked. My appointment with the scleroderma program isn't until October unless I ask the PCP to push for an earlier appt. due to medical necessity. I am not there yet.
I hope someone is still on this thread! I know it is old.