Lobular does grow in a linear, spiderweb-like fashion, and very hard to see especially in dense breasts. While monitoring does allow them to find it “early”, it’s still cancer when they do finally find it.

I’ve had LCIS since 2008. All in left breast. Never taken tamoxifen. Well, I tried it in 2011 for a month and couldn’t handle it. I’ve had 4 needle bx and 3 excisional bx. In 2020, at age 50, they found pleomorphic LCIS (PLCIS) and extensive LCIS (my 3rd excisional bx). Pleomorphic, and florid, are two subtypes of LCIS and are more advanced and considered aggressive. And, considered an actual precursor not just high risk.

Genetic testing clean. No family history. Last year they moved me to MRIs every 6 months, apparently both breasts are very busy (and dense). I can no longer take the waiting and monitoring. I’m going for a prophylactic double mastectomy (PDMX) in July 6.