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@lindahco

I’ve had a ctscan, bone scan, genetic testing is in progress. They rushed the breast. All came back negative. My ER and PR were positive and HER2 Negative. Not entirely sure what that means but told those were good markers. I go in for my post op on Friday. How soon do they usually start treatment? Chemo?

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Replies to "I’ve had a ctscan, bone scan, genetic testing is in progress. They rushed the breast. All..."

Hello @lindahco ,
I got the diagnosis of ER/PR+, HER2- stage4 BC (lobular) in January 2022. I have mets to bones. I had a CT scan of chest, abdomen, pelvis (CT cap) and bone scan (bone scintigraphy). They started treatment a month later since I was pre-menopausal. They put me on an ovarian suppressor called Zoladex. It's a monthly shot that inserts a rice grain sized implant to your abdomen. The following month I started Abemaciclib (a CDK 4/6 inhibitor), anastrazole (an aromatase inhibitor (it stops production of estrogen) and Zometa (an infusion to help bones). First two are pills to take every day. Zometa is a monthly infusion and Zoladex is a monthly shot. I took Zometa monthly during the first year, and in year two it is every third month.

The first 2-3 months is adapting to these meds so it may be a bit difficult. Zometa was tough the first few times. I had some diarrhea with Abema but then it went away. Some hot flashes (menopause like symptoms with anastrozole) but quite tolerable. Some hair loss/thinning. Some fatigue. My memory is not as sharp as it used to be. Loss of desire for intimacy. Depends on your particular situation but chemo was not offered to me, nor a mastectomy.

To support the treatment, I started daily walks (as much as I can). I shifted to a mostly plant based diet. Sleep is important, so is mental health. Try to go easy on yourself and if anyone offers to help with anything, accept 🙂 🙂 🙂

Lots of love and prayers to you.