← Return to Successful Depakote weaning

Discussion

Successful Depakote weaning

Epilepsy & Seizures | Last Active: 4 days ago | Replies (43)

Comment receiving replies
@grammy82

@shivb
Sorry, I try to be faithful with my responses...but somehow, I missed this.
My brain has been taking short vacations in the memory department...so this is my best guess....I think I was taking 1000 or 1500 a day. I don't recall if they were DR or ER. At the time, I was also taking 1mg of clonazepam, which I had been taking since I was 15 years old. No neurologist has wanted to try to take me off that since I've been on it for so long.

He gave me a reduction schedule and put me on Primidone....funny, that is Mysoline and the first med I was on in 1955, Mysoline and phenobarbitol...the old days.

I remained on just Primidone and Clonazepam until I got GCA in 2019 and was given mega-doses of prednisone which affected the anit-convulsants. Then I went on Keppra, 2000 mg per day. That is where I am right now and it works for me.

I knew my family would be so worried if I had a seizure that they might think I needed assisted living...so as long as I'm seizure-free, I'm fine. As our bodies change, our chemistry changes.

I'm concerned when you said you felt your doctor didn't know enough about the weaning process...he certainly should. A neurologist over-medicated me in 1985 on 24 Tegretol a day!! I was such a mess I went to the Mayo Clinic in Rochester, and they weaned me off --- I got another neurologist. My best💞

Jump to this post


Replies to "@shivb Sorry, I try to be faithful with my responses...but somehow, I missed this. My brain..."

My son went off Depakote twice once when he was 13 and the other at 18. Both times he was told to just stop it completely??? I was really concerned about this but he listened to his doctor and it was ok, a little agitated but ok. He was on 1000mg DR at age 18 and probably about 500mg at age 13.