Osteoporosis and Petite Women

Posted by njhornung @normahorn, May 16, 2023

The form I completed before going to an osteoporosis clinic asked if I weigh less than 127 pounds. That magic figure supposedly puts one at greater risk. The Endocrinologist I saw commented on how petite I am and asked if I have always been petite. While for a few years my weight was a little higher I am now back to around 100 lbs. Can't get back to my 21" waist, though.

Searching the literature, it seems that being petite is associated with higher T scores and not just post menopausal
Supposedly DEXA takes this into account when height and weight are entered into the software. However, one could be short and have heavy bones or be small boned. The old weight charts at doctor's offices used to take that into consideration. Does anyone have knowledge that DEXA truly adjusts for structure and the high scores are not an artifact of the technique? There is less bone for the xrays to penetrate which could be interpreted as the bone being less dense. Does density determine quality?

I am at the point of not pursuing treatment until I get a better handle on what my risk truly is. My only fractures were a clean break to an ankle when I slipped on ice and a finger playing touch football. Both were many years ago.

Any insight to offer?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@ans

To @normahorn and others - maybe you got this information already , but if not-
BONE STRENGTH =BONE DENSITY what the DEXA reveals +BONE QUALITY what the TBS (trabecular score ) would reveal.
So clearly the DEXA IS NOT THE WHOLE PICTURE!!!

And my endocrinologist, for one, and I assume many, are not that interested in pursuing the TBS test as the DEXA seems to be the standard upon which they base their decisions.
And finding a place that performs the TBS can be somewhat challenging, though I’m told it’s just another button they push when doing the DEXA if the appropriate add on to their DEXA instrumentation has occurred.
Good luck!!!

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Any one searching for an imaging center that offers DEXA with TBS should fill out the form on https://www.medimapsgroup.com/ but be prepared, even though medimaps is very responsive, you may have to do a lot of leg work, making calls and confirming that the imaging center knows that they can do a DEXA with TBS and then fighting to get the results. At least, that was my experience.

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@babychung22

I also have osteoporosis and I am on the injection for six months. It’s working well, but I do trains 4, 5 times a week and I find that helps with pain a great deal.
I am a petite frame.

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Trains as in weight training?

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@fearfracture

Any one searching for an imaging center that offers DEXA with TBS should fill out the form on https://www.medimapsgroup.com/ but be prepared, even though medimaps is very responsive, you may have to do a lot of leg work, making calls and confirming that the imaging center knows that they can do a DEXA with TBS and then fighting to get the results. At least, that was my experience.

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What’s TBS?

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@omgirl

Trains as in weight training?

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How do you know the injections are working after six months only?

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@omgirl

What’s TBS?

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Trabecular Bone Score. Integrated TBS software installs on DEXA scanners to estimate fracture risk based on determination of bone texture.

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@fearfracture

Regarding your comment, “There is less bone for the xrays to penetrate which could be interpreted as the bone being less dense,” bone density tests don’t truly measure bone density.

“The DEXA technique analyzes the attenuation of xrays as they pass through an area of the body. The method cannot detect the depth of the bone which is being measured, and thus is actually an "areal" density in g/cm2 rather than a "volumetric" or Archimedean density in g/cm3.” Source: https://courses.washington.edu/bonephys/opBMAD.html. That is also the link to Dr. Susan Ott’s BMAD calculator, which you might find interesting.

You might also want to look up Dr. Lani Simpson, https://lanisimpson.com/ She talks a lot about inaccuracies with DEXA scans.

It’s good that you are trying to gather more info and not letting a doctor push you on to osteoporosis meds.

Here are a few more informative links
https://www.betterbones.com/fractures-and-healing/bone-quality-thinner-women/
And the link below lists tests you should have before going on osteo-meds https://www.betterbones.com/testing/whats-the-cause-of-your-osteoporosis/

BTM (bone turnover marker) tests can tell you if you are losing a lot of bone right now. One DEXA scan is just a snapshot in time. It doesn’t tell you if you are actively losing a lot of bone. BTM tests can.

And this website can help you find an imaging center in your state that has DEXA with TBS capabilities. https://www.medimapsgroup.com/

TBS (trabecular bone score) is a much better indication of bone health/strength than T scores are. According to BetterBones.com “various studies document that well over half of those who suffer a low-trauma “osteoporotic” fracture do not have an osteoporotic bone density. Rather they have “osteopenia,” or even normal bone density.”

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Thanks! Very interesting - actually I’m on Prolia and due for next injection this afternoon!

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@gigi4

How do you know the injections are working after six months only?

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Doctors should be doing baseline BTM (bone turnover marker) tests before starting patients on osteoporosis medications and then running the tests again a few weeks after starting the meds. The key term here is “should be”. My personal finding is that most doctors who claim to treat osteoporosis are really good with prescribing medications and fail to do much of anything else. Most ppl diagnosed with osteoporosis are never told to have bone turnover marker tests run because, again, most doctors in this field are severely lacking. If osteoporosis meds (Prolia) are working properly, you can tell by the change in BTM results between the 2 tests.

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@fearfracture

Doctors should be doing baseline BTM (bone turnover marker) tests before starting patients on osteoporosis medications and then running the tests again a few weeks after starting the meds. The key term here is “should be”. My personal finding is that most doctors who claim to treat osteoporosis are really good with prescribing medications and fail to do much of anything else. Most ppl diagnosed with osteoporosis are never told to have bone turnover marker tests run because, again, most doctors in this field are severely lacking. If osteoporosis meds (Prolia) are working properly, you can tell by the change in BTM results between the 2 tests.

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Thank you for your response and info. I’ll use this info should I decide to use any of these drugs.

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@gigi4

Thank you for your response and info. I’ll use this info should I decide to use any of these drugs.

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I'm new to this health problem. The prescribed Alendronate upset my stomach, despite taking it before eating and sitting up for half an hour afterword. Does osteoporosis and osteoarthritis always come together? Also have an autoimmune Connective tissue disorder. The bones are one. Does anyone have any thoughts about how these things may be related?

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@fearfracture

Any one searching for an imaging center that offers DEXA with TBS should fill out the form on https://www.medimapsgroup.com/ but be prepared, even though medimaps is very responsive, you may have to do a lot of leg work, making calls and confirming that the imaging center knows that they can do a DEXA with TBS and then fighting to get the results. At least, that was my experience.

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You are soooo right!!!! Thought I was golden when I fell off my chair realizing there were 3 places in my close geographic area. Only then to be sooo disappointed to find one place said , yes we have that but we don’t use it. - that was at a drs office so I moved onto a large creditable hospital that was also listed. I had to eventually get connected to the imaging lab to inquire as those on the general phone knew nothing of this at all. When I spoke to a person that actually does imaging there , her respond was again we do have that (the TBS) but our drs have made the decision not to use it. I couldn’t believe my ears. I asked why and she couldn’t tell me the answer. I asked her to please ask the question and to call me back. I’ve never heard from her. Then one last lab to try. This one further , but still easily doable. An hour away.
I had a phone number and tried for half a day to get to the correct people. Such a run around I finally gave up. Then a few weeks ago I decided to drive to the address so I could find someone to talk to directly. I got there and asked if they did the DEXA WITH THE TBS. She had no idea. Waited for the lab worker in between pts. I asked her , of which she said , “I don’t know”…. I’m thinking is this possible???? Then she said , “you know yesterday I did a DEXA and the read out was different. Let me go check”
She came back to say yes the extra read out was a TBS. She explained as a lab person you just run the test as you’re told and that’s it. Crazy!!!! Anyway, she was excellent… I explained I had a DEXA scheduled in 3 weeks and would like to cancel that one and have one with the TBS. She set up an apppointment with me on the spot and last week I had it. Gave me the read out and an extra copy for when I meet with Dr McCormick in August. The lab worker did in conversation tell me that they have the most up to date machine to do DEXA’s in the whole area. Glad I persisted!!! However, as I also found out , I could have called that phone forever and never got them as it’s hooked up through the hospital somehow and calls are not put through to the lab at all. SO just know you may need to SPEND TIME to really make this happen!!!

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