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Neuroendocrine tumor and carcinoid tumor
Neuroendocrine Tumors (NETs) | Last Active: Jun 14, 2023 | Replies (26)Comment receiving replies
So sorry that you are going through this. Have you tried other hospital systems that could address this? You don't say where you live, but you might consider calling MD Anderson Cancer Center in Houston, TX. They have top doctors there & people come from all over the world to seek care from there. 1-844-541-3221 or you can request an appointment online. Best to you & I hope you get some answers sooner than later.
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Thank u so much for ur kind words. My insurance denied my NET Scan so I'm appealing that to get my scan done. I reside in Charlotte , NC. I had chasing wat was wrong with Me for over 10yrs and finally got the right Dr. to send me to a Gastroenterologist and this is where I'm at today. I've been educating myself on this rare form and that's why I came here. To search for answers, to be in support of and to see which direction to go with this. It's like I was just told this in March 3rd and have been trying to get a NET Scan since then??? I'm wondering if I should search for another Gastroenterologist or is this normal for wait time..??!