Hi, I"m the executive director of DES Action, USA. I'm also a DES daughter (exposed to DES in utero). 5-10 million pregnant women were prescribed DES in the 1940s, 50s 60s and early 1970s. I'm so sorry for your health troubles, you are not alone.
Because the US gov no longer updates it's site, our webpage is the most complete information on DES available.
If you had vaginal cancer and were exposed to DES you likely had CCA, a very rare cancer connected to DES exposure.
Please report your cancer to the Clear Cell Adenocarcinoma Registry. The link is on the home page of DES Action. CCA was found in young women who'd been exposed in utero (like you). We are very interested in hearing about recurrence. If you'd like to talk offline, please do reach out to me though the DES Action website (I"m not allowed to post urls on this comment board, which is a good policy)