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← Return to Tightness in Knees
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It's at its worst in the morning when I get up and I do stretches to relieve the tightness. If I spend time working at my desk it gets tight again. Stretching and a long walk helps.
It only started a few months ago and I thought it was passing but it seems to be continuing with maybe very slow improvement. My specialist does not understand. I just had an MRI of my spine which was negative and my vitamin B12 and B9 are fine. It could have been stress related - my life was very stressful right at the time it flared up but I have been used to stress so I am not sure this is the cause. I also did a hike just as it got worse so maybe I did something physical that accelerated the neuropathy. I am at a loss to explain it.
I have a feeling that I have 2 neuropathies - one axonal and the other demyelinating and it is the second of these that has started. It does seem correlated to sugar intake (which I have halted) but my doctor assures me I am not even pre-diabetic.
Not knowing the cause, I have no idea what to expect - improvement or deterioration. I am 55 but seem to have added 10 years in 3 months. I am taking all the supplements and trying to sleep more.
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I'm reading your post and shaking my head, thinking, Oh boy, does that sound familiar! My symptoms – if I'm being totally honest – began 10 years ago, but they seemed inconsequential at the time. No pain, only increasing wobbliness. Of course, my wobbliness grew more wobbly over time. It was only last August that I received my idiopathic polyneuropathy diagnosis. Still no debilitating pain, only this damnable wobbliness. Because, in years past (I'm 78), I was a distance runner, I have a number of pre-neuropathy joint and bone woes. A number of those woes crop up every day, particularly toward evening. I'm forever asking myself: Is this ache due to my neuropathy? (in which case, I'll discuss it with my neurologist.) Or has it nothing to do with my neuropathy? (In other words, should I go see my podiatrist? Or my orthopedic doctor?) Or are these relatively minor aches I'm feeling in my knees, ankles, and feet, a manifestation of BOTH my neuropathy and years of distance running? (In which case … well, to whom do I speak first?) It can all be quite maddening, can't it? ––Ray (@ray666)