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Have you been able to taper prednisone with long lasting success?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 17, 2023 | Replies (41)
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@ncgal

I started with 10 mgs 3 years ago and had several flares in that time. I just got down to 1-1/2 mgs a few days ago and felt awful for about two of those days. I decided to see if I could stick it out without going back up to 2 mgs. Yesterday and today I feel great. I really want to get off this stuff. I'll wait a couple of weeks before going down to 1 mg.

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Replies to "I started with 10 mgs 3 years ago and had several flares in that time. I..."
grammy82 | @grammy82 | Jun 7, 2023

@ncgal
I have GCA and it has taken me three years to get to 3mg. I'm going on a trip but will resume tapering when I get back at the rate of .5mg every four weeks. I do take Actemra injections so I'm hopeful I will get off pred.
BUT, I would be more than happy to take a low-maintenance dose if necessary and have a better quality of life.

Dr. Bashar Dasgupta, from the UK, keeps many of his patients on a low-maintenance dose. It may not be a bad thing !....do you see a rheumatologist?💞

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