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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 days ago | Replies (6021)

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@ray666

Hi, Dawn. Welcome! I read your post with a bit of a smile as I just got back from the supermarket, where I spent the past three-quarters of an hour pushing a cart up and down the aisles. Mine is an idiopathic neuropathy, and my neurologist, like yours, was at a loss to give advice. He also didn't seem too interested in puzzling out the cause. At first, that frustrated me. But he's a good guy and otherwise appears 100% committed to helping me. Our last meeting was a month ago. Since that time, I've been doing a lot of self-educating, trying to learn as much as I can about idiopathic neuropathies. (I realize that sounds self-defeating: idiopathic neuropathies wouldn't be called idiopathic if there was much to learn!). However, studying my condition has helped me put together a bunch of good questions to ask my neurologist (at least, I hope they're good questions). This morning I phoned him and made arrangements to meet in a few weeks' time for the two of us to go over my questions. Frankly, at the moment, I can't think of much else to do to keep my spirits up other than to pursue a cause, even if, once found, knowing the cause is of no help. If you've not yet visited their site, you might want to check out the Foundation for Peripheral Neuropathy; also (and maybe especially) the Foundation's YouTube site, where you'll find dozens of informative videos. Good luck to you! And again, welcome! ––Ray (@ray666)

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Replies to "Hi, Dawn. Welcome! I read your post with a bit of a smile as I just..."

Hi, Ray. I hope you'll post your neurologist's answers to your good questions - that would be very helpful to read. I'm going to check out the YouTube videos. Thanks!
-Dawn