Sorry diagnosed April 2022.

I had a small bowel resection in 2007 because my carcinoid tumor had grown around several loops, causing blockage. I did well with the surgery. My advice is get back on a solid food diet as soon as you can, and walk, walk, walk!

I did not have the liver ablation because the cancer had not spread there at that time.

Best wishes on your journey!

Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I had the surgical removal of a neuroendocrine tumor in the small bowel. I’m a relatively healthy 81 year old man.
It was “laparotomy general surgery” (large incision). The surgeon removed a well-differentiated neuroendocrine tumor with a 1.2 cm greatest dimension. Tumor was also present in 1 of 6 lymph nodes. He removed 19 cm & 5 cm segments of bowel in a resection of distal jejunum. Staging: pT2, pN1, pMx. For a week after I was home from the surgery I had significant night sweats but none since that.

I had a PET scan with dotatate (Cu-64) on August 23, 2022. The radiologist noted that it showed “multiple small to borderline Cu-64 Dotatate-avid mediastinal and hilar lymph nodes, suspicious for metastatic disease.”
An Aug. 25th Chromogranin A blood test was 81 ng/mL within the standard range of less than 93 ng/mL. My oncologist offered to begin Octreotide injections. I decided to wait and to get a second opinion. I chose to go to Dana-Farber Cancer Institute in Boston and a team there examined the original biopsy, all tests including the PET and thankfully reached a different conclusion. They saw only slight “uptake” of the radioactive marker in those lymph nodes, not the significant uptake that is usually indicative of metastatic NET cancer. Combined with my lack of symptoms they noted that if a repeat PET scan in three months showed a similar result, I should be fine.
A November 22, 2022 repeat PET scan was “similar to the prior exam, stable.” Both Drs. were very optimistic and I have subsequently had several follow up CT scans, several Chromogranin A blood tests within standard range and no symptoms. I feel so very fortunate and strongly recommend second opinions. Good luck to you, PJ. Bob.

Appreciate your information.
Best of luck going forward

@pjsheridan2022, I moved your question about small bowel obstruction and surgery to this related discussion. Click the link to read all helpful comments.
- NETs: Scheduled for small intestine resection: What to expect? https://connect.mayoclinic.org/discussion/newly-diagnosed-and-scheduled-for-small-intestine-resection-what-to/