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Can we make PMR funny ? Can we fight the immune cells involved ?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 7, 2023 | Replies (38)
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@tsc

Hi @hunib33,
You were smart.
I suffered in silence for a year thinking I had fibromyalgia. Then I was so fatigued, lost a lot of weight, and got shingles on my face (despite having the Shingrex vaccine a year prior).
I thought I had Lupus. I confided in an infectious disease doctor friend who went over my bloodwork, found I was anemic, and told me what other tests to request my doctor to take. He was resentful and told me if I had GCA, I'd be blind. Long story short, my inflammation markers were off the charts and biopsy of the temporal artery was positive.
Are you the only person in your family that you know of who's been stricken? My maternal aunt had it, and my mother-in-law as well.
I was taking prednisone about a year and a half and have been off it about nine months, no flareups.
How are you doing now?
Did you have an illness or injury before the onset of symptoms that you think caused your immune system to go into overdrive?
Wishing you the best,
Teri

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Replies to "Hi @hunib33, You were smart. I suffered in silence for a year thinking I had fibromyalgia...."
hunib33 | @hunib33 | Jun 6, 2023

Thank you for the well wishes Teri! I wish you vibrant health and healing as well as we traverse this path.

I’m the sole survivor of my nuclear family but none of them experienced anything like this. I didn’t have an illness that preceded the onset, but I had high stress factors for years in various positions I held before I retired. I think my having PMR is just the luck of the draw. Almost everyone who lives to old age has to contend with something, and right now I’m dealing with this. I’m not sure I can control when it goes into remission. I follow all the positive recommendations to the best of my ability and think someday it may switch off as it switched on. I do practice deep breathing, and I relax more, and I sleep well now. I also take Zinc Picolinate and Vitamin C to give my immune system a boost. I’m trying to help my immune system heal.

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