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Neuroendocrine tumor and carcinoid tumor
Neuroendocrine Tumors (NETs) | Last Active: Jun 14, 2023 | Replies (26)Comment receiving replies
I’ve read a lot of medical journal articles regarding these PPGLs, and the best possible treatment is surgical
removal, when that’s possible;
Of course the patient volume at MSK means you will likely face delays with regard to scheduling future visits to their facility such as was the
case I experienced yesterday
after I returned home, and made my telahealth appointment, I expected maybe a 2 month appointment, but I was shocked it wouldn’t be until October 5th, because the doctor told me during yesterday’s visit that people can die from this disorder; then why am I having to wait
4 months before my next visit.
And this is just a telahealth visit. I don’t get it, I’m going to turn 70 in just 4 weeks, and it would have been the ultimate birthday gift to finally have this behind me. I apologize if I’m coming off as
someone who isn’t grateful for the recognition of a disorder that is long overdue, but so many medical personnel never even considered the possibility that
I could be that 1 in a million
patient so afflicted by a disorder that I left my job (postal letter carrier), and went on SSD at 40 years of
age back in 1998. My life has
been changed forever because
of this illness. I was a thin young lady , 115 and 5’ 6”, and
no primary I came before, ever, for one minute, that it was strange for me to have these elevated bp measurements with my slight
build; I come from a strong medical background, and the
secondary cause probability would have been echoing in my ear.
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I just want to say a big “thank you” to everyone who has taken the time to read my somewhat “long winded” posts. I really appreciate the “hugs” and
“likes” as well. A little update after my lengthy post of yesterday; I heard from MSK, and based on my answers to questions they asked online, they say I should definitely do a 1 hour telehealth consult with a geneticist because my pheochromocytoma could be genetically linked. It is very important for me to know
if that is the case, because
I have 3 grown sons under
the age of 50, and I have 9 grandchildren under the age of 23. I wouldn’t want
any of them to go through
what I’ve gone through.
Before I ever took the postal letter carrier job, I
had been enrolled in college to work towards a
degree in medicine, and
because I was in a head-on collision, and suffered
a brain injury( not as bad as it sounds), a contusion of the left parietal lobe, which in layman’s terms is
a bruise, but it caused me to lose the use of my right
hand, and forced me to drop out of college, because I had no idea how
long this would last, and I’m not ambidextrous. I became so depressed over
this turn of events, because I love medicine so much, I felt I would have been able to help others acquire a good state of health, and I would have started in areas where people don’t
have access to the best medical care. I feel a healthy country is only as good as the health of the
people living in that country. We can do better, this is one of the wealthiest country’s on earth, but we have one of the worst maternal mortality rates, why is that? This is turning into a
book. Thank you for taking the time to read my posts. Guten abend!