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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)

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@partialperson

I am on probably the highest levels of carbamazepine you will ever meet or speak to. My symptoms similar with a diagnosis of Peripheral Nerve Hyperexcitability, Cramp Fasciculation Syndrome Benign. For me it helped tremendously and the side effects, well nothing detrimental that I can think of ever. I am also on high levels of baclofen and gabapentin. We are looking to keep me comfortable as there is no known cure and hopefully research somewhere somehow can stop this wretched horrible mind bending uncontrollable way of life for me and others.

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Replies to "I am on probably the highest levels of carbamazepine you will ever meet or speak to...."

I am wondering if medical marijuana would help you in this situation. It might be worth a try if you haven't gone down that avenue.