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@omgirl

I’m planning to ask my physician about Tymlos since my recent DEXA results had worsened by almost 10% on hip area. It’s not horrible at -2.2 but the 10% decease is definitely concerning. Had to stop Prolia which seemed to be helping as developed jawbone necrosis after taking for many years. I haven’t heard of the oral medication, what class of drug is it as cannot take bisphosphonates either due to both an allergic reaction & they also have the jawbone necrosis side effect

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Replies to "I’m planning to ask my physician about Tymlos since my recent DEXA results had worsened by..."

@omgirl like me you are kind of stuck with issues taking bisphosphonates (and my doc doesn't use Prolia). A score of -2.2 is not yet osteoporosis. I hope insurance takes into account your previous experience with Prolia and issues with bisphosphonates. I have to say that in my experience, since 2001, the scores do jump around a bit and I look for trends, but 10% might be significant. Do you see an endocrinologist?

This is my number one worry about long term osteoporosis meds..how was your jawbone necrosis diagnosed? How would you even know you had that?