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Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Cancer | Last Active: Mar 11 10:27am | Replies (51)
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@dick61

I have the CHEK2 gene and was treated with proton radiation for prostate cancer at age 78. Did well. Then had a mastectomy and 16 proton radiation treatments for 3 positive nodes at age 81. On tamoxifen and doing ok. No other cancers so far. Terrible gene that requires regular follow ups! Good luck. Now age 83+. I am a male and 2 of my adult children inherited this awful gene.

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colorado73 | @colorado73 | Jun 8, 2023

Thank you for sharing your story. I'm so sorry you had to go through all of that. Yes sir it IS a terrible gene for sure! My oncologist I saw 2 days ago flat out said- We just don't know much about this gene because it's so rare! Ugh...not what a patient wants to hear. He recommended I go ahead & do the Radioiodine treatment, unfortunately & definitely get a hysterectomy this year to prevent the uterine cancer side of it. But without estrogen replacement therapy due to the gene mutation thriving on estrogen. And he's ordering an ultrasound of my armpit because of pain I'm having since double mastectomy surgery last year. Ugh...just so much still going on & my endocrinologist called me back yesterday about my Synthroid medicine. She's changing the dose again because of the awful side effects im having on the 200mg dose. Ugh...roller coaster, gotta love it.
Blessings to you.
By the way, I'm 50 now. I was diagnosed with BC at 47, skin cancer at 48 & thyroid cancer at 50.

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