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Need hope: Neuropathy from chemo

Cancer: Managing Symptoms | Last Active: Sep 29 8:27am | Replies (151)

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@carlies

I’ve barely begun reading
all the comments/info about neuropathy and have to stop-. Why? Because it upsets me terribly to read about this! My husband was given a trial drug that totally cut him off at the knees. Neither onco’s ever questioned all his side effects! The most we were ever told is: We know neuropathy is a side effect. In the meantime my husband was left wondering what on earth was going on with him?! The SE’s were debilitating! He never complained… As I read, I can pin together the fact: the drugs gave him horrid neuropathy! To quote to husband, ‘‘Everything hurts.’ And yet NO help was offered. No suggestions were ever made!!! And now I learn there ARE things to help! There are some onco’s at Mayo Clinic who should be ashamed of their lack of care, questioning and help. Totally ashamed-. All I can say to this is: Thank you for those of you who share experiences and offer help. “Karma” will take care of the rest…

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Replies to "I’ve barely begun reading all the comments/info about neuropathy and have to stop-. Why? Because it..."

I am sorry that you feel so bad. No one told me that chemo will cause neuropathy. I couldn't sleep, function. The doctors were very comfortable with giving me biger doses of gabapentin, but I don't like medicate myself. I do not understand why this detailed is not given and explaind to chemo patients. I think is scandalous. It would not stop me from having chemo, but it would prepared me for the consequences.

I hope you find some solutions soon.