So sorry for your heartache and troubles and pain your husband is going through and you too PLEASE stay STRONG it's not easy I know I'm right with YOU in my heart and prayers (((hugs)))

@ellenanne33 I think you left the right guy in charge....and prednisone does a job on your moods, the illness is frightening, and you wonder if it will ever be under control. Mentally it is tough, but also on the caregiver for sure.
At the time this had been going on with GCA, my husband is in his second year of dementia. One time when my daughter-in-law (my son's wife) was here helping...she told me I needed to be kinder to Larry. I'm no saint, but I found by really only expecting what he is capable of and showing appreciation (instead of wanting to pull my hair out)....I'm more relaxed.
Do either of you get alone time? I paint and escape. About a month ago my hubby brought home a busted chest of drawers he found on the side of the road...What? He has spend a small fortune on rehabing that dresser...brass knobs, gliding drawers....but it has changed his disposition entirely. I compliment him a lot. Is there anything you could get your husband interested it? And..can you get out for lunch or just out?
You are in a tough place as I am, but we cannot bring around change in a heartbeat. Will he have anyone come to see him? Not my husband...inanimate objects only. My heart💞