Hi
I have a new aortic ascending aneurysm 4.1. I had a brain aneurysm a year ago unruptured with a craniotomy done at Johns Hopkins and found out it was a 4.7. Not a 2 threat here in Orlando they thought I had.
May11,2022. A year later I am still experiencing neurological symptoms but happy it’s clipped. The Surgery was successful, however she said the aneurysm was very sick and flat and causing the neurological symptoms I was having prior to surgery. The Bell’s palsy is gone, the stroke like symptoms are gone. But she said she had to go near the optic nerve so when I woke up after the 10 hours surgery, I could not see out of the right eye. I saw orange. Then white then it got better a year later. Still have issues though with lights flashing and some cloudiness’s in the bottom of the eye. My vision is better. But I now have a lot of issues with that eye being tormented with migraine and blurring on and off with very bad striking sharp pain in that eye that comes and goes. I have on going daily vascular symptoms. From light shows in my eyes upon waking up to massive headaches that go all day long. Strange neurological symptoms that are hard to describe but feel like I have trouble thinking during these episodes. I get three different types of headaches. Vistibular, chronic cluster types, hemiplegic, as I can’t feel one side of my face to my lips being numb. Also I lose my hearing in one ear then loud ringing occurs with these then I know it’s going to be a long one. Disturbing and anxiety approaches as it’s scary.
I also recently had three fusions in my cervical spine, C,3,4,5 due to sever stenosis in my spine. Plus thoracic issues with T5T7 two fractures. March 2013. My hands are tingling a lot with lightening bolts going through the fingers. Hope this goes away.
The Migraines I get are daily and since my Fusions I am getting an added headache to where the pain comes from the neck up over the top of my head to my right eye. Extreme pain.
Stressful.
Nothing seems to stop these. I live with all this going on and have adapted to it but find it to
This new normal. Gabapentin seems to help a little. I can’t take more than 300mgs three times a day. I get terrible reactions to more.
Hope some of this goes away with time.
I would like to find out exactly what’s going on neurologically with my brain. I’ve been my own advocate and seem to diagnose myself. I have seen two neurologists here in Orlando but they seem to be perplexed. They say my issues are complex. But have no idea how to help and possibly there is no help.
I suffer with no answers. Too complex for them.
Possibly the Mayo Clinic can sort all my neurological issues out with me so I can live a more normal life. I certainly would appreciate the superior treatment and help as my issues are quite complex.