I didn't think of it that way before. You're right, if each of us know approximately 3 people that does add up to a lot. I agree, there isn't a lot of press and I find that other than my family and friends, when I talk to strangers about LC they don't know what I'm talking about. My symptoms are: shortness of breath which is made worse by hot, humid weather and cold weather, chest pain, heart palpitations, dizziness, brain fog, fatigue - I sleep up to 15 hours a day/night, upset stomach, headaches, occasional vomiting.

About 4 months ago I've started sweating excessively every night and I wake up and my pajamas are absolutely soaked. It's awful and way worse than when I was going through menopause. I'm also starting to sweat like crazy during the day. This week I started having changes to my sense of smell and taste. It amazes me that I've had LC for almost 3 years and I'm still getting new symptoms! What are your symptoms? What will they do for you at the Immunology Practice? I was going to Pulmonary Rehab for my shortness of breath and heart issues and it helped somewhat, but of course not as much as I was hoping.