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Neuroendocrine tumor and carcinoid tumor

Neuroendocrine Tumors (NETs) | Last Active: Jun 14, 2023 | Replies (26)
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@hopeful33250

Hello @katiedid

I'm so glad that you found a good doctor who understands what you are going through. That makes such a difference, doesn't it?

You said, "This doctor laid out what needs to be done, and I feel vindicated for once." Did he say specifically, what the treatment plan would be?

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Replies to "Hello @katiedid I'm so glad that you found a good doctor who understands what you are..."
katiedid | @katiedid | Jun 6, 2023

Yes she did; she said the 24 hr urine collection that I finished on 5-3 would be
sent to the Mayo in Minnesota, and turnaround time is pretty
quick, and then Medicare
would most likely approve
the need for a scan to locate the tumor. MSK is renowned as a center of excellence in so many disciplines, and I asked her if I could still be treated there if it learned
that my tumor is not cancerous, and she replied that MSK treats
people with cancerous as
well as non- cancerous conditions. Thanks for your interest.

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