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DiscussionDiagnosed with Stage 4 pNET: What should I know?
Neuroendocrine Tumors (NETs) | Last Active: Sep 21, 2023 | Replies (36)Comment receiving replies
Replies to "This all sounds so familiar. His major pain is also in left shoulder. I feel so..."
Hubby and I talked about the new treatment and decided against it because of the possible side effects when the oncologists told us it could cause leukemia we chose to stay the course because he is already severely anemic and this could drop his red blood count lower and if he developed leukemia it was game over quickly. We decided to enjoy what time we had left together without him taking more chances for "rare" side effects considering this cancer alone is rare. I believe my health issues factored into it as I too have had rare issues crop up on multiple occasions. we often joke about of all the rare things we have done, hitting the powerball is not one of them sadly.