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@norkatsc

This all sounds so familiar. His major pain is also in left shoulder. I feel so bad as he also tries to do things and is exhausted and achy for days. We go next week again. The sandostatin helps with the nausea. I know there are so many worse off, it's just I worry about him. Cat scan tomorrow to see how things are since pet scan three months ago. Hope things go well for you and your husband. Let me know if they lower shit and hiw that works.

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Replies to "This all sounds so familiar. His major pain is also in left shoulder. I feel so..."

Hubby and I talked about the new treatment and decided against it because of the possible side effects when the oncologists told us it could cause leukemia we chose to stay the course because he is already severely anemic and this could drop his red blood count lower and if he developed leukemia it was game over quickly. We decided to enjoy what time we had left together without him taking more chances for "rare" side effects considering this cancer alone is rare. I believe my health issues factored into it as I too have had rare issues crop up on multiple occasions. we often joke about of all the rare things we have done, hitting the powerball is not one of them sadly.