@grammy 82 - you give good uplifting messages! Sebastian Unizony, MD who was on the Sarilumab Trial is also at MGH.
Might I ask you - have you ever gone down the path of looking into advocacy through Rare Disease patient groups ?? It all came together for me today - PMR is a rare disease! In USA there is NORD, for example.

A good friend responded to my PMR news today saying she was sorry to hear " although sometimes having a diagnosis helps you understand what treatments are out there" YES ! And my former boss gave me a good pep talk today about being on Prednisone - jeesh, he has gout !! -Which sounds awful.