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Dialysis - Stories and Questions
Kidney & Bladder | Last Active: Nov 7 5:37pm | Replies (44)Comment receiving replies
According to my peritoneal dialysis clinic, I am a "fibrin factory" because I get chunks of it in my catheter drain tube almost everyday. I use heparin everyday, 1.5 to 2cc. They are considering having me add a second session of dwell-and-drain each day, to head off additional fibrin build-up The second session would be way shorter, only an hour. Has anyone else done this, or had this issue/concern?
My underlying kidney disease is due to an ultrarare autoimmune condition, that is collagen based. It is my thought that the fibrin amount I produce may be a result of this disease.
Has anyone else had this problem? What did you do?
Ginger
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Well, replying to my own post now. LOL
I did some in-depth research about the collagen based kidney disease I have, called Type III Collagenofibrotic Glomerulopathy. It is ultra-rare, and no research monies being used since there are so few patients with it. Type III Collagen, it turns out, is a pretty interesting creature, and can have the effect of producing fibrin within the peritoneal cavity. Voila! the answer to my being a "fibrin factory".
When I presented this evidence to my dialysis clinic, we all agreed that adding a second session every other day hours after the first session ["it's just one bag, dwell for an hour", but still it would add almost another 3 hours start to finish!] would not be fruitful. We did modify my heparin to 2cc per day, injected into the first bag. Oh, and I did indeed do that second session for 2 weeks, what a chore!
Glad I took the "bull by the horns" and advocated for myself, once again.
Ginger