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Successful Depakote weaning

Epilepsy & Seizures | Last Active: 4 days ago | Replies (43)
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@shivb

Thank you for sharing your experience. And good to read your are doing well. Can you please share you experience on-

What was the dose of Depakote when you weaned off over 6 months? Was it ER/DM? Was it lesser than 500 mg? I am particularly looking for weaning off with this medicine and with what dosage?

What is the milder med now?

PS: I will be of course working with my Dr. but so far, I have found that once when Dr. starts on this med, they don't have enough information on the weaning process.

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Replies to "Thank you for sharing your experience. And good to read your are doing well. Can you..."
grammy82 | @grammy82 | Jun 7, 2023

@shivb
Sorry, I try to be faithful with my responses...but somehow, I missed this.
My brain has been taking short vacations in the memory department...so this is my best guess....I think I was taking 1000 or 1500 a day. I don't recall if they were DR or ER. At the time, I was also taking 1mg of clonazepam, which I had been taking since I was 15 years old. No neurologist has wanted to try to take me off that since I've been on it for so long.

He gave me a reduction schedule and put me on Primidone....funny, that is Mysoline and the first med I was on in 1955, Mysoline and phenobarbitol...the old days.

I remained on just Primidone and Clonazepam until I got GCA in 2019 and was given mega-doses of prednisone which affected the anit-convulsants. Then I went on Keppra, 2000 mg per day. That is where I am right now and it works for me.

I knew my family would be so worried if I had a seizure that they might think I needed assisted living...so as long as I'm seizure-free, I'm fine. As our bodies change, our chemistry changes.

I'm concerned when you said you felt your doctor didn't know enough about the weaning process...he certainly should. A neurologist over-medicated me in 1985 on 24 Tegretol a day!! I was such a mess I went to the Mayo Clinic in Rochester, and they weaned me off --- I got another neurologist. My best💞

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