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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@kimegraves

@imagine1
Hello Dawn,
I read your post and first I want to say I am sorry you have neuropathy, it can very very painful at times and challenging to life. You asked if anyone had experience with gabapentin, I have CIDP and that also comes with a great deal of pain and I have been taking gabapentin for about two years now. I have to say in the beginning it didn’t seem to help much but I have had my dosage increased a few times and now the pain has substantially decreased. One important thing that I have learned is to take the medication routinely as close to eight hours apart as possible.
If I get busy and don’t take the medication on time the pain gets severe and it is difficult to get back under control. I also feel that it took several months
for the pain to subside. I find that being active, attempting to decrease my sugar intake and getting my IGG infusion as scheduled also makes life better. I do hope you fell better in the future. Keep us posted.
Kim

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Replies to "@imagine1 Hello Dawn, I read your post and first I want to say I am sorry..."

Thank you, Kim. That is really helpful to know. I'll make sure I'm taking Gabapentin routinely and I'll be patient with the time it might take for it to work. Only started taking it recently.

I'm also going to make a point of being more active on a regular basis. I've shied away from exercise because of the pain it causes and a fear of falling, but I've seen a number of posts about it being beneficial with neuropathy, so am thinking I just have to keep doing it.

Greatly appreciate your response.
Dawn