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4 treatment options from my doctor, which one should I start with?
Neuroendocrine Tumors (NETs) | Last Active: Aug 2, 2024 | Replies (73)Comment receiving replies
Hi, my hubs starts his Lutathera on June 21st. It'll be interesting to compare notes. Did they give you the info about how long it'll take and precautions, etc? I was told it would be 6 to 8 hours. In your own room with a bathroom to use hourly (keep the kidneys healthy, big concern with this treatment). And I was told this med comes in from either Italy or NJ and sometimes the patient has to wait for it bc they only send it out so many hours prior to giving it to the patient. They also give nausea meds and amnioacids, I think, again to help pricy the kidneys. Please let us know how you made out and I'll do the same for my hubs.
Replies to "Hi, my hubs starts his Lutathera on June 21st. It'll be interesting to compare notes. Did..."
@sandy23 , I have written previously about my experience at Mayo Phoenix in 2021 with the Lutathera. But thought I’d add a few more comments. First, I cannot say enough good about them. They were very knowledgeable, efficient, and patient-oriented. They gave me a bunch of info, answered all my questions, and were quick to reply to anything I sent through the portal.
A day was usually from 7:30-2:30 or so, then I’d go back to the motel and either take a nap or walk before going out to dinner with one of my grown sons. I had a very unusual reaction to the first treatment that neither the docs there or here had ever heard of. Three days after the treatment I got violently sick, had vertigo and passed out briefly. Not telling you this to scare you as again, no one ever heard of this happening. Because of this they reduced the dosage to half and that never happened again. Everyone is different and only you all and your doctors can decide what’s the best course for you. For me they felt that decreasing the dosage would still give me the treatment I needed. Also, they had me take .5 of Ativan + 8 mg Zofran right after my treatment for 24-48 hours afterwards and it worked great in controlling the nausea. So, there’s all kinds of ways to help manage any side effects. Other than that, I would have some fatigue and just generally feel crappy for a couple of days, but then was out and about and on with my life.
I am 73 years old with a long not so good health history, but I would not hesitate to do it again if need be.
Wishing your husband the best of luck. I do believe all will go well.
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I did receive the Lutathera treatment plan, instruction, procedure and post-care sheet during consultation. Actually I will start my treatment on June 7 from 8 AM to 1 PM (6 hours) due to other cancellation, pretty similar to what you described. I have also been prescribed nausea medicine just in case of use at home. Blood work should be done before each treatment. I will share my experience of the treatment.