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Looking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Hi, I am in this same boat with non diabetic neuropathy and no one has found an answer for me as to the cause. So it sounds like medication might be the only answer for managing the pain. It certainly hinders my normal activities such as yard work etc. I am on Gabepenten which helps a bit, but I resist going on something stronger .
I would really appreciate it if you could share publicly what works for you. Thanks.
Replies to "Hi, I am in this same boat with non diabetic neuropathy and no one has found..."
@user_ch98d0b5c . Good evening Ann. “Trauma” is the cause of my SFN (small fiber neuropathy). The trauma has been the result of numerous accidents, injuries, and surgeries. I use only medical cannabis for pain and discomfort. My mornings begin with a 1:1 CBD/THC tincture and my evenings end with a 2:1 CBD/THC tincture at bedtime. I have been using some form of medical cannabis for about 10 years. Adjustments have been made as my SFN has progressed or the barometric pressure inches its way down below 30.00.
I also use daily mindfulness and meditation. Then there must always be stretch yoga along with stability and balance exercises as prescribed by my physical therapist at Mayo Clinic. Twice a week I go for a Myofascial Release therapy session to relieve the restriction in the fascia tissue around my body.
I do take duloxetine for anxiety and depression plus 600 mg of gabapentin at bedtime for the tingle-tangles in my hands. I am trying a new anxiety medication in addition to the duloxetine, Bisphosorine, and it is working well to keep me from getting into the sequence of anxiety which produces pain, and then pain produces more anxiety. I abhor getting into that merry-go-round of symptoms because it is difficult to catch up with some form of relief.
Is this what you wanted to know? You must remember that with a progressive condition like neuropathy, you need to frequently make adjustments to the treatment program you have chosen.
What are you in need of right now?
May you be safe, protected, and free of inner and outer harm.
Chris
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I too am suffering from nondiabetic neuropathy. NO ANSWER anywhere just physicians pushing all sorts of drugs with huge side effects especially if you are older like me (82years young) I have been everywhere done everything and spent a fortune with false hopes. Tons of tries with physical therapy that made me worse not better as I have age degenerative meniscus tears and osteoarthritis in the knees not operable as I do not have bone on bone. So I am now being approved for Medical Marijuana. This road will take a long time to get the proper strain and dose level at a great cost. It is not a cure but if the level eventually becomes correct it will reduce the pain level. That is all I can ask for. There is a new therapy hopefully coming on the market after more trials it is low laser therapy. It is an interesting read. So for the younger people on this site, there is hope on the horizon. GOd BLess you all
Vicki