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Carcinoid liver cancer/carcinoid heart disease/ kidney damage

Neuroendocrine Tumors (NETs) | Last Active: Jun 5, 2023 | Replies (7)
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@husker1

@mollie59, I'm just wondering how you are doing now that it has been several years since the heart surgery. My husband is waiting to be scheduled for the open heart surgery due to carcinoid heart disease, and we just learned about the carinoid tumors within the past month. It's all been overwhelming, and looking for someone that has experience to reflect on.

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Replies to "@Mollie59, I'm just wondering how you are doing now that it has been several years since..."
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2023

Hello @husker1 and welcome to the NETs Support Group on Mayo Connect. I can certainly understand that you are looking to connect with others to gain support during this time. NETs is a rather rare form of cancer and it can be confusing as well as frightening to be faced with surgeries.

If you care to share more, I would be interested in knowing what symptoms led to the discovery of NETs? Also, is your husband being seen by a NET specialist?

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