@lynmal725 How incredibly frustrating!! Imaging with MRI is a good starting place to look for or rule out any diseases or disorders that the neurologist was considering. It’s reassuring that the MRI showed no evidence of disease however that doesn’t make the symptoms any less real. Since Mayo Clinic isn’t covered by your insurance does your pediatrician have other suggestions of where your daughter can be seen where there are multiple specialities who collaborate with one another? This is why I initially suggested Mayo Clinic.

If a family member of mine was experiencing the symptoms you describe with your daughter I would continue going back to the pediatrician and advocate for more options.

Are you in the U.S.? If so, may I ask what state you are located in?

Have you tried Cleveland children’s hospital?
Kat

I just got back from Mayo yesterday....I got a out of network approval but i had to show numerous items that had to be sent to my insurance company from my doctor including all prior tests and meds i have taken.
Finally after 6 months of trying between my Doc and myself and reviews by insurance company they approved it.
That would be the route i would try.
We are going to a PPO plan in Oct so we have more freedom of doctors we can see.
Insurance can be a pain but sounds like you have the records to get approved.
Hope this Helps.