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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Made it through the weekend and still no recurrence of symptoms, going on almost 2 weeks with the 20 mg in the morning, 10 mg at night. My rheumatologist did recommend Friday that I stay on this dosage for 4 weeks total (~ 2 more weeks) before I try to taper. I think I actually did manage to side-sleep a couple of times this weekend, so I can't feel any better about the state of things now vs 2 weeks ago, when I needed help out of bed. I even pushed a little harder with the yardwork this past weekend and still have had no flare-ups. So fingers crossed that things stay this way for 2 more weeks!
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Hello @bfh3 -Aha ! you are being advised to do what seems to be described as a " slow "taper - 2.5mg /month ? And yes -my gardening work awaits me !
- Maybe @walkamok can plot our tapering side by side : ) - I have been advised to do the 2.5mg decrease for 30mg to 20mg in steps of 6-7 days - i will do that until i get back to 20 mg -- so by about June 22 when i have another appointment. My response to 30mg was quite remarkable - AND thanks to this forum the SPLIT DOSE WAS key - for my pain scoring at least ! Is there a clinician or SME that can comment on the origin of these two approaches ?? - Thank you !
P.S. Have you seen this :
Rheumatology 2020;59:1906–1915
Longitudinal clusters of pain and stiffness in
polymyalgia rheumatica: 2-year results from the
PMR Cohort Study
Sara Muller -1st author