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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:20am | Replies (277)
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@moldy

So your Rheumatologist placed you on a maintenance dosage forever. My original one, (who is not a doctor but is allowed to diagnose and prescribe meds in NYS) after 6 months, just took me off and advised "if the TA happens again we'll do the same thing". Even after I asked her if I should continue on it. Not telling me that if it flares up anywhere within my body where it isn't noticeable I will have a stroke or die. After 6 months of being too weak to walk to the mailbox, another Rheumatologist (A DOCTOR, this time) put me on Prednisone and now Actemra and anticipates complete recovery.

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Replies to "So your Rheumatologist placed you on a maintenance dosage forever. My original one, (who is not..."
grammy82 | @grammy82 | Jun 5, 2023

@moldy

I drew my breath at " who is not a doctor and is allowed to diagnose and prescribe..." I stopped breathing...so glad you have real doctor now!

I'm curious under what law can someone like that dispense medication?...and at the price of your sight!
💞

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smudge621 | @smudge621 | Jun 6, 2023

I've was diagnosed with GCA a few months ago and also have the pain in my shoulders and arm. I just started taking Actemra with Prednisone. I've had headaches and blurred vision. My Rheumatologist will try reducing Prednisone dosage because of long term side effects due to other health issues. So far so good with 3 injections of Actemra. Wishing you luck!

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