← Return to Polyarteritis anyone?

Discussion

Polyarteritis anyone?

Autoimmune Diseases | Last Active: Jun 20 9:47pm | Replies (27)

Comment receiving replies
@SusanEllen66

@efg4me wow! That’s a tough situation. The best thing I can do is pray for your recovery.

I like hearing that you create body butters, and bath products. That sounds like a very creative way to relax, and enjoy the fragrances of nature.
For me, I started fiddling around with acrylic paints and canvas about 3 years ago. I have no talent, however every once in awhile something happens and I create something special. Recently, I started creating art, and colored glass using alcohol inks. That’s a very versatile medium! I learn by watching YouTube videos.

I’m retired and when I get tired in the afternoon, I will paint for an hour or two and then go take a nap.
I have fibromyalgia too so my energy level is low most of the time. Now, I’m going for a sleep study to rule out narcolepsy. That’s a story in itself…zzzzz

Blessings
Susan

Jump to this post


Replies to "@efg4me wow! That’s a tough situation. The best thing I can do is pray for your..."

I pray they find answers for you quickly! I was a nurse but covid screwed up my brain and body, then came Polyarteritis! The thing about autoimmune disorders is they “travel in triplets”! (That’s what I call it; not sure everyone would agree, but 🤷‍♀️) Fibro, Polyarteritis and I’m waiting for the 3rd (most likely thyroid but we’ll see)

My skin got so dry after I moved to a new state and I lost my job during covid because after 90 days they told me I was terminated. So I started using any recipes I could find to make Body Butter and finally found my perfect mix! There was too much left over for me to use, so I started selling them at a local artisan market and it kind of just “took off”!
I used making it as my own personal physical therapy. I made a lot of mistakes with recipes because my brain fog was so intense. I treated the recipes like medication orders and if I messed up I took it hard (like if the recipe was a prescription then it would been a med error) Physically it takes hours to make Body Butter and it took some time to build up my stamina for being in my feet for hours, whipping, piping, wash the greasy dishes, start another fragrance, etc.
I would love to see that art! My sister started “pouring” On canvas and it’s so beautiful!!