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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18, 2024 | Replies (1907)Comment receiving replies
@dadcue Thank you for that as my doctors are at MGH!
Replies to "@dadcue Thank you for that as my doctors are at MGH!"
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If you see Dr Stone tell him that someone in Iowa said thank-you.
The GiACTA study gave my rheumatologist the idea to try Actemra. It worked for me. After failing for 12 years to taper off prednisone, I was able to taper off in less than a year after Actemra was started.
I have been off prednisone for 2 years and counting. I have no side effects from Actemra that I'm aware of. My rheumatologist thinks Actemra is better than long term prednisone. I would agree but I would like to be off Actemra too.