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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic small fiber PN but only have the numbness and no pain so medication is off the list of anything that helps for me. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. It's good to learn as much as you can about your condition and what treatment options are available that might provide relief. Here are my two favorite reference sites for learning:

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/

The Foundation for Peripheral Neuropathy has a pretty comprehensive list of complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Have you looked into any alternative treatments?

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Replies to "Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic..."

Thank you for your reply. It is interesting that my sister also has neuropathy and is also not diabetic. However, she experiences numbness more than pain.
I am presently about to research if CBD oil might help.

My neurologist has suggested I can try a different medication if I want to, but warning that every medication has it's side effects. Since I have not had any side effects from the Gabapentin, I have decided to stay on it for now. Some days are better than others, but some days leave me wondering if I should be switching to something else. I don't like taking any more medication than necessary. I do wonder if more exercise like walking, would help or aggravate
the condition?