So your Rheumatologist placed you on a maintenance dosage forever. My original one, (who is not a doctor but is allowed to diagnose and prescribe meds in NYS) after 6 months, just took me off and advised "if the TA happens again we'll do the same thing". Even after I asked her if I should continue on it. Not telling me that if it flares up anywhere within my body where it isn't noticeable I will have a stroke or die. After 6 months of being too weak to walk to the mailbox, another Rheumatologist (A DOCTOR, this time) put me on Prednisone and now Actemra and anticipates complete recovery.

More and more doctors are leaning toward maintenance doses or keeping you on Actemra to avoid a costly flare..💞never worth it.