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Autoimmune Diseases are relentless

Autoimmune Diseases | Last Active: Jun 12, 2023 | Replies (21)
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@kimegraves

@lovelyday
It sounds like you are truly having a difficult and painful time. It is very important that you see a physician that can diagnose what the causes are. I can’t emphasize enough that this support group is wonderful however we should not be diagnosing or suggesting
what treatments you should receive. Your physician sees you in person and can assess you, do the appropriate treatments and if needed refer you to a specialist! Also if you are not satisfied then you need to find a physician that you are satisfied with and that you trust! I hope you find the appropriate treatment and feel better soon. As for the individuals that are making suggestions for as to any diagnosis or treatment I do believe this support group should be used to explain to others what has worked for you with a specific diagnosis only. I know we all have our hearts in the right place but suggesting treatments can be dangerous.

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Replies to "@lovelyday It sounds like you are truly having a difficult and painful time. It is very..."
windyshores | @windyshores | Jun 4, 2023

@kimegraves thanks for the reminder on guidelines. I cannot edit my post but want to say that every question I had above came from my own experience.

My kidney values are worse with my frequent dehydration.

I have had chronic Lyme and also a lupus diagnosis and recent positive antibodies for scleroderma.

I have done a food elimination diet that resulted in a very limited diet that nevertheless lessened inflammation.

I have tinnitus- ringing in the ears- and have had medical appointments for it that tell me my brain will adjust.

I am seeing a PT for massage because PT exercises increase inflammation, and have been seeing a non-surgeon ortho for lidocaine injections.

Sometimes I slip up and think it is assumed I am writing from experience. What I just wrote here exactly matches my response 🙂 This is a good reminder @kimegraves to monitor ourselves when we respond quickly from experience and don't make it clear that it is from our own lives.

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