I broke my foot in 2014 and had a doctor that was supposed to be a rehab doctor treating me. He was absolutely hopeless. I complained so much they finally brought in the doctor that had treated me in the previous hospital, post surgery. He explained in nice words to this doctor that he was an idiot.
Fast forward 2years and I finally got an appointment with an outpatient neurologist to help me with my incredibly awful migraines, non epileptic seizures and other types of aura (not the normal ones you see with migraine.) I had an MRI which the doctor was supposed t o explain to me. I walked into that appointment and it was the SAME doctor that had treated me in 2014 as a rehab doc. He told me I had FND, it was caused by anxiety, and to see my primary doctor for some antidepressants. I had a friend with me and she loudly said "SHE IS THE LEAST ANXIOUS PERSON I KNOW !!". So I asked what else I could do. He wrote down the website for FND and said to go home and look it up.
So I researched, and researched and researched. I finally went to my primary doctor, who thumped the desk and said "YOU ARE NOT ANXIOUS - THIS IS REAL". I told him I thought I had Familial Hemiplegic Migraines and showed him the PubMed etc articles. He agreed. I got on a genetic trial and they agreed with me. AND they later told me they had found a new gene expression that was causing my problems and the solution was: High doses of UBIQUINOL with KANEKA - I'm on 900 mg a day!!! My CoQ-8 gene was caput and CoQ-10 supplements would mitigate it. They have, it has and I am NEVER going back to that neurologist!!!