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Autoimmune Diseases are relentless
Autoimmune Diseases | Last Active: Jun 12, 2023 | Replies (21)Comment receiving replies
I'm wondering if this could be neurological puffy face at times upon waking up and I'm dehydrated too tremor's upon waking up at times where my head shakes with slurred speech at times inflammation throughout body food is killing me I was tested for gluten sensitivity it came back okay ringing in my ears and it can get worse after eating chronic pain is always there it never leaves me ALONE bones hurt especially spine joints are deteriorating intestines a mess my are hips bone on bone there's gallbladder issues and bladder as well with environmental triggers and mentally I'm a mess now with an OCD in my life which is absolutely horrible so much is connected I wish it would just go away 😥
Replies to "I'm wondering if this could be neurological puffy face at times upon waking up and I'm..."
My husband FDNY down there on 1 day of 9/11 1st diagnosed w encephalitis now had stiff persons plus aka PERM .has has 2 seixures , brain surgery and deals w this dusease receives ivig and rituxamaab .also has plasmapharesis while in hospital for brain suregery .its been a nightmare severe weakness esp in legs and overwhelming fatigue .he also had lung surgery after numerous bouts w pneumonia they found nodule .but for some reason WT C doesnt want to hear about it saying it has nithing to do w being down there my daughter did find on a 9/11 blog on facebook w at least 5 other peoe w same symptoms so frustraing .They dont have enough evidence to prove it was caused by being down there .not enough rats to do study on you poor guys /gals that didnt even thi k about it when you all went running down there ti help people his results were sent to mayo clinic .we deal w columbia pres in nyc and see autoimmune doc Dr weslsey maybe if she sees someone else w same symptoms .it will change
This whole thing is just crazy im hearing this from another person suffering ..have you had any brain scans / mris , cat scans .your truly Ellen ODonnell
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@lovelyday
It sounds like you are truly having a difficult and painful time. It is very important that you see a physician that can diagnose what the causes are. I can’t emphasize enough that this support group is wonderful however we should not be diagnosing or suggesting
what treatments you should receive. Your physician sees you in person and can assess you, do the appropriate treatments and if needed refer you to a specialist! Also if you are not satisfied then you need to find a physician that you are satisfied with and that you trust! I hope you find the appropriate treatment and feel better soon. As for the individuals that are making suggestions for as to any diagnosis or treatment I do believe this support group should be used to explain to others what has worked for you with a specific diagnosis only. I know we all have our hearts in the right place but suggesting treatments can be dangerous.