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Functional Neurological Disorder (FND)

Brain & Nervous System | Last Active: Nov 8, 2023 | Replies (123)

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@nickm

Hi @jubilee I am responding to a post dated Feb 26, 2019, you made on Mayo Connect. You drew my attention to Functional Neurological Disorder (FND) as well as its subset FMD. The two websites you referred to seem to understand my condition, the same way as I understand it myself. Namely, "My brain and nervous system *hardware* has no problem, but the *software* is messed up"
I wish to exchange notes with you as well ( with your consent) and be informed of your progress since 2019. Let me briefly share my story. I have elsewhere described my condition (on Mayo Connect) as an internal shock from an invisible defibrillator. I have yet to see a Neurologist, the appointment is in October 2023. This issue resurfaced recently when I started practicing meditation. When I reach a certain state in my meditation, I experience convulsions, and I cannot transcend to a deeper level of meditation because of the "electric shocks" Your post offered me a great lead to probe my condition further.
[Pardon the Caps] THE MOST IMPORTANT FACET OF MY PRESENT STATE IS THAT I CAN BRING ON THE SHOCKS ON COMMAND. AS SUCH IT MIGHT BE CONDUCIVE TO OBSERVATION AND STUDY.
I am interested in your progress and treatment. Since it is only a matter of brain training, I feel quite hopeful for you as well as myself. We live in a time when brain science is on the cutting edge of its development.
Thank you for your attention Jubilee, Hope to hear from you.

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Replies to "Hi @jubilee I am responding to a post dated Feb 26, 2019, you made on Mayo..."

That is very interesting Nick. Have you had any non epileptic seizures as well? I was told this past Friday that I need to retrain my body to respond to certain stimuli differently. Yoga, meditation, PT and OT were part of my prescribed treatment plan.
Best of luck to you,
Kat

@nickm @jubilee Mayo Clinic Connect has a page for private messaging (PM). If you look at the right top of your page you will see an envelope icon. Click on the envelope icon and you will be taken to the Private Message page. You can PM each other. When there is a private message for you to read you will notice a number on the envelope showing you how many private messages you have.

I hope this helps both of you if you decide you’d like to support one another with private messages. Could you let me know what you think about using this feature of PM on Mayo Clinic Connect?