I'm guessing that's what Dr. Dahl will determine this month. I'm not sure my GFR is low enough to go on the transplant list, but as you say, PKD is not going to get better. My hope is that I will go on the list and that my kidney function GFR stays above 15 for...maybe 5 years? I'm probably being overly optimistic. The last thing anyone would want is an emergency situation.

I read stories on Google about people who had no idea their kidneys were failing until the last minute. Then it becomes do or die. In a weird way, I feel fortunate my GFR started gradually decreasing and my docs were alerted and finally I was diagnosed with PKD and nephrogenic diabetes insipidus. Since there are no symptoms, some may happily go along in life with no clue of kidney disease.