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Have you been able to taper prednisone with long lasting success?

Polymyalgia Rheumatica (PMR) | Last Active: Jun 17, 2023 | Replies (41)
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@johnbishop

Hello @leon1649, I think the average length of time for most folks with PMR to get into remission and taper off of prednisone is 2 to 5 years. For me, it was 3 and half years for my first episode of PMR and 6 years later the PMR returned and it took me 1 and half years to taper off of prednisone. I've been in remission for about 5 years now so hope it's not close to returning again.

@virginiaj @scpartain @briand3960 @munchie and others may also have some experience or thoughts to share on the topic.

Do you keep a daily log with your prednisone dosage and your pain level when you first get up in the morning?

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Replies to "Hello @leon1649, I think the average length of time for most folks with PMR to get..."
briand3960 | @briand3960 | Jun 3, 2023

For me, it was a 22 month slow taper. Many things that I read said 6 months to a year. But it really is a marathon not a sprint. I read that people who do have a longer taper many times remain in remission longer too. I have now been off prednisone for a year and a half and doing well. The few times that I tried to speed up my taper, I only ended up in more pain and going backwards rather than forwards. Wishing you all the very best! I am so thankful for this forum. Great job John!

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etphnhome | @etphnhome | Jun 10, 2023

I'm in my 1st month of PMR, currently at 17.5 mg and my Dr. wants me to reduce to 15mg and check in in 2 weeks. Ironically, I started at 15mg a month ago, asked to go higher and he moved me to 17.5mg, back to see him 2 days ago and he already wants me to beging taper to 15mg? I told him I had run out of 2.5mg dose for a few days and took 20mg 1 day. I had the least pain from waking up until the next day on 20mg! I met him the next day and he wants me to go to 15mg. I think I will start a journal as suggested here. Thank you...

I liked the 20mg dose but only 1 day he gave me?

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