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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
Interestingly, my GP was the one who tested me first for PMR. I think she was tired of me going back repeatedly over the past year about the pain which was increasing. She tried to get me into a rheumatologist but no one would add an extra patient. Something needs to be done about that!! I’m in Saskatchewan Canada. So I suggested my husband’s internist. She has been a godsend!! It has been a bit of a learning curve as well as trying to accept this diagnosis. But one foot in front of the other, as they say! Who ever they are!!😁Im just relieved to have some respite from the pain, not looking forward to all the side effects of prednisone, but am happy to be able to move again!
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@vjs May I ask did you have the hallmarks of PMR - Bilateral stiffness in shoulders and hips ? Sudden onset , Pain is worse in morning , after waking ( what I call the "Ground Hog Day" feeling - think of Bill Murray waking up over and over again in same situation. It is 2023! Pre-Dx, when I googled bilateral pain "polymyalgia rheumatica popped up! I was already familiar with the term when I first saw PCP. Please look at the info in pmrandyou.com and PMRandIL6.com. NASAIDs are not going to help, there is immune cell-mediated pathway that needs blocking. The conversations on this site are very helpful and others have had uncannily similar experiences with Prednisone dosing and others are trying KEVZARA. European clinicians
/researchers seem to have more interest in "fast tracking" PMR Dx. I do not (yet) know who are the Key Opinion Leaders in the USA, besides Dr Callabrese of the Clevland Clinic.