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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Dec 4 6:51pm | Replies (117)

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@mmata

I am a 70 year woman that has been trying, for the last 24 years, to deal with ever progressing, severe Adhesive Arachnoiditis. I am in 24/7 severe pain that is so bad that I frequently pass out, several times a day from terrible spikes in my pain. I have sought help from just about every type of doctor in a 50 mile radius, to no avail. Each doctor I have sought help from has mostly turned away telling me that they don't have anything to try to help me as I have tried almost everything. Then they leave the exam room. I need help so badly I dont know what to do. I can't travel anymore to try to find a doctor in another state or even in my ohelp, wn state if it's far away. I need help. I'm despirate. Does anyone have a doctor, or medication or treatment that has helped you or someone you know that has advanced Ahesive Arachnoiditis ? Thank you for your time
MKM

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Replies to "I am a 70 year woman that has been trying, for the last 24 years, to..."

Hello @mmata. I am sorry to hear of your progressing Adhesive Arachnoiditis and subsequent pain. I wanted to connect you with others who may be able to share more with you as you look for answers, so you will notice I have moved your post here:
- Any Adhesive Arachnoiditis members here?: https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/

Members such as @bad2thebone @ldb @loveusa @kgrainger and @the4curtins may be able to share their experiences with you.

Have you considered telehealth-type appointments whereby you meet virtually with a doctor outside of your travel area?

Thank you
mmata